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A mum with a rare condition, which limits protein intake to just grams a day, is pleading for access to life-changing medicine. Claire Briggs, 45, from Midlothian has phenylketonuria (PKU) a rare, inherited metabolic disorder that causes an amino acid called phenylalanine to build up in the body. If left unmanaged, it can lead to brain damage. For Claire, every mealtime is a planned exercise that requires preparation, precision and a set of scales. The mum-of-two can only eat 15 grams of protein
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