Heterotaxy Syndrome Awareness Day is coming up Saturday, May 4. And for the first time ever, Malachi’s House of Hope is hosting a Heterotaxy Syndrome Awareness Walk that same day in downtown Brighton.

Amara Lee Robinson of Scipio was diagnosed with heterotaxy syndrome. A benefit event is planned in September. SCIPIO — Amara Lee Robinson was born three weeks early at a women’s health clinic in ...

The Heterotaxy Syndrome Awareness Walk is scheduled for May 4 at the Brighton Mill Pond, sponsored by nonprofit Malachi’s House of Hope. The event's registration begins at 6:30 p.m. and the two-mile ...

Atlanta native Beka Ramsey is 1 in 10,000. Those are the odds someone will be diagnosed with the rare, often life threatening disease called heterotaxy syndrome. Identified in utero, she had a hole in ...

MISSOULA, Mont. — The Sturm family's journey is a testament to the power of community support and resilience. Faced with the daunting diagnosis of heterotaxy syndrome and hypoplastic left heart ...

Researchers from Baylor College of Medicine presented data from postnatal testing with the aim of providing molecular diagnosis for a patient with prenatally diagnosed heterotaxy syndrome.

A new children's book, "If You’re Lucky Enough to Know a Unicorn," was inspired by a child who passed away from a rare condition. The book aims to teach readers about the impact children have and ...

As lawmakers push to get a health care bill through the Senate, one New Jersey mom is speaking out. Alison Chandra's son, Ethan, was born with heterotaxy syndrome, a rare genetic disorder in which ...